The two-year-old Shivraj Daware from Maharashtra, suffering from a rare genetic disorder, had become the first such patient from India who was given a Rs.16 crore life-saving injection by a US firm for free after winning a lucky draw.
Shivaraj Daware is suffering from Spinal Muscular Atrophy (SMA) , a rare genetic disorder.
The injection (Zolgensma – gene replacement therapy) manufactured by a US-based firm is the most effective drug for such patients, according to doctors.
After the initial diagnosis, Shivraj was referred for treatment to Hinduja Hospital in Mumbai where neurologist Dr Brajesh Udani suggested that Zolgensma injection was the drug of choice to save Shivraj’s life , Vishal Daware recalled while speaking to PTI.
Discussion about this post